We work with children and young people, aged from birth to 18 years, who have epilepsy or who are under investigation for epilepsy.
We provide support and information for children, young people and their families and carers. We want to ensure that all children and young people with a diagnosis of epilepsy stay healthy, live a full life and stay out of hospital.
We provide care in the community, such as in a clinic, or in the home. We work from 9am to 5pm, Monday-Friday.
We work closely with other professionals who help to support the child, for example paediatricians (children's doctors) or neurologists (a doctor who is an expert in conditions that affect the brain, spinal cord or nerves).
We also work closely with other professionals such as family support workers, social workers, schools/nurseries/colleges.
We provide regular teaching sessions for colleagues, education settings, children/young people and their families/carers.
Our service is offered to all children and young people aged 0-18 years who live within Salford either diagnosed with Epilepsy or under investigation for Epilepsy.
We carry out the following services (not exhaustive) -
- Safeguarding children (including early help, child in need, child protection and children looked after).
- Training for medical/nursing colleagues, education staff, parents/carers, to feel confident and competent to support children/young people in epilepsy/seizure management and administration of rescue medication.
- Carry out referrals/liaise with other services for further medical investigations such as Bloods, MRI Scans and EEGs.
- Support with health care planning – develop annual updates of care plans for children/young people with a diagnosis of epilepsy or non-epileptic attack disorder
- Transition and preparation for adulthood
- Health promotion and education
- Liaison with universal and specialist services
- Referral and signposting to other services and agencies
- Consultant led and Nurse led clinics held both virtually and face to face
- Monitoring and management of anti-epileptic medications.
When attending epilepsy clinic for your first appointment you will be met by one of our clinicians – this may be an advanced nurse practitioner, registrar, Specialist Nurse or consultant.
During your first appointment we will take a detailed history of the events which have been occurring, we will then devise a plan going forward. If we feel you need further investigations this may include an EEG referral and/or an MRI referral. Both of these tests will be carried out at Royal Manchester Children’s hospital.
We may ask to see you again in a few months with a detailed diary of events – such as when the episodes occur; how they present, what the child/young person does during, how they are afterwards, how long the episodes last and how frequent the episodes occur. We may also request videos of the events which are extremely helpful with our diagnosis process.
You will be provided with the contact details for our epilepsy specialist nurses should you require any further support following your appointment.
7th Floor
St James House
Pendleton Way
Salford
M6 5FW
Who can refer?
- A&E Departments
- GPs
- Inpatient wards
Referral eligibility -
- Registered with Salford GP or lives in the Salford locality
- Age 0 years to 16 years
- Confirmed diagnosis of Epilepsy, 2 or more afebrile seizures, Paroxysmal episodes, Non – Epileptic Seizures
Royal Manchester Childrens – Epilepsy Specialist Team
Royal Manchester Childrens – Neurology
Childrens Community Nursing Team
Complex Physical Needs team
Paediatric OT and PT
Learning Disability and Neurodevelopment team
Continuing Health Care Team
Children’s Social care
- Epilepsy Action - https://www.epilepsy.org.uk/
- Non-Epileptic Attack Disorder – https://www.neurokid.co.uk/
- Manchester Neuro Sciences – NEAD - http://www.manchesterneurosciences.com/departments/neuropsychology/nead
- Together for Short Lives - https://www.togetherforshortlives.org.uk
- SUDEP Action - https://sudep.org/
- Fits, Faints & Funny turns - https://www.what0-18.nhs.uk/professionals/childrens-nurses/paediatric-pathways/fits-faints-and-funny-turns
- Young Person’s E-Therapy Services - https://www.selfhelpservices.org.uk/referrals/cyp/
- Young Epilepsy - https://www.youngepilepsy.org.uk/
- The Daisy Garland Charity - https://www.thedaisygarland.org.uk/
- JSense Charity (supporting parents and carers of children and young people with special educational needs and disabilities (SEND), across the Jewish community and those who support them) - https://jsense.org.uk/