PINNT https://pinnt.com/Home.aspx
Association established to help people or carers who are living with an illness which requires treatment by intravenous, enteral or artificial nutrition therapy
Addition:
Patient leaflet “Managing psychological well-being: Top tips for adults living with home parenteral nutrition” can be found at:
https://pinnt.com/News/News/Non-Members/Top-Tips-leaflet.aspx
Mayo Clinic
Website provides information on nutrition and intestinal failure, patient stories, resources for physicians, education and quality and the Mayo Clinic
Cleveland clinic
Website provides information on intestinal failure information, discharge information, indications for intestinal transplant, diagnosis and transplant
https://my.clevelandclinic.org/departments/transplant/programs/intestine
Additions
St Mark's Hospital and Academic Institute https://www.stmarkshospital.nhs.uk/
St Mark’s Academic Institute is the centre of education and research at St Mark's Hospital; the first and only specialist bowel hospital in the UK.
Leaflet for health professionals, “Top Tips for Managing the Psychological Well-being of Adults Requiring Home Parenteral Support (HPS)”: https://www.bapen.org.uk/pdfs/bifa/bifa-top-tips-series-13.pdf
Crohns and Colitis UK - https://www.crohnsandcolitis.org.uk/
“An association that supports people affected by Crohn’s and Colitis, including friends, family, healthcare professionals and employers.”
Ileostomy Association - https://iasupport.org/
“A national support group for people living with an ileostomy or internal pouch, including families, friends and carers”